Raising awareness for Motor Neurone Disease (MND) or more commonly referred to as ALS or Lou Gehrig’s disease in the States, has taken a giant leap forward over the past week with the #icebucketchallenge going viral.
I’m deeply moved and excited because I am confident that awareness is the first step towards finding a cure. As someone living with this disease, it is a personal passion of mine that one day no one would have to.
Neuroscientists have told me that they will find a cure, it’s only a matter of time and resource. In the meantime, with no prevention and no treatment, every 12 hours someone dies from the disease and every 12 hours someone else is diagnosed with it, in Australia alone.
The idea of the ice bucket challenge is pretty simple: get a bucket of ice cold water tipped over your head, nominate friends to do the same and donate to the cause. Everyone’s doing it; Oprah, Bill Gates, Mark Zuckerberg and many others in the sporting and entertainment world.
And it’s working. Twenty eight million Facebook users are discussing the challenge, while the ALS Association (ALSA.org) has received unprecedented donations, so far more than $35 million.
Here at home, Kochie, Russell Crowe, footy teams, and politicians are getting behind this social media phenomenon. Tonight, MND Australia are hosting the #icebucketchallenge world record attempt at Etihad stadium in Melbourne.
You may have heard that Neale Daniher, one of our AFL sporting heroes, revealed this week that he has MND / ALS. Sean Lee, a sports writer commenting on this said,
“It will attack his body, take away his strength, destroy his independence and kill him. Nothing is surer…
And yet Daniher maintains his sense of humour. He remains positive…he says on more than one occasion that he has been lucky. It is a typical Daniher response to hardship. “She’ll be right mate.”
Except that it won’t be right. Not this time.”
As someone battling MND, a disease that I have but that does not and will not have me, I am so encouraged by the #icebucketchallenge, throwing this disease into the realm of public awareness.
Imagine if this crazy, fun challenge was the catalyst for raising enough money to fund enough research to find the right cure for MND / ALS.
Then, like Neale, we could say “she’ll be right mate” and it really would be.
August 22, 2014 at 10:40 am
It is admireable the creative ideas that people have come up with to raise money for MSD. As Christians we believe the word of God is the highest authority in this earth and in our lives. Jesus is the same yesterday, today and forever and by His stripes we were healed.
(Isaiah 53:5) Medical practioners play there part in treating the symptoms of MSD and other diseases and help many people but the Word of God says in Exodus 15:26 For I am the LORD who heals you . The word of God says in Luke 4:40 When the sun was setting, all those who had any that were sick with various diseases brought them to Him; and He laid His hands on every one of them and healed them.
JESUS is the God who heals all our diseases,have faith in Him and believe the good report that BY JESUS STRIPES YOU ARE HEALED, IN JESUS NAME! HALLELUJAH ,AMEN!!!!
August 26, 2014 at 5:09 pm
Thanks Ian appreciate and too believe in the healing power of Jesus.
August 22, 2014 at 1:29 pm
Thanks Phil for your encouragement. I had a dream last week that I flew over to say goodbye to Bruce and there you were, both of you flat out tending to the Church sleeves rolled up backs bent happily working together. So like the both of you. Bless you.
August 26, 2014 at 5:08 pm
Thanks Pat. Sounds like a great dream. We both love working together.
August 23, 2014 at 12:22 am
Awesome Phil – love that you did it even though it’s winter here! I donated in your honour and I hope that your “she’ll be right” day is really soon.
August 26, 2014 at 5:15 pm
Thanks Shaz, me too.
August 23, 2014 at 2:22 am
Great post and video, my friend! I watched the video three times 🙂 I am doing the challenge tomorrow.
August 26, 2014 at 5:13 pm
Thanks. It is so good to see the USA take this so far. As I understand over 50 million dollars. Blessings my friend.
August 27, 2014 at 12:32 am
It’s up to almost 90 million dollars now, Phil.
I did the Ice Bucket Challenge the other day. I will probably post it on my blog this week.